Very Tiresome VT

Day 1179.

The trouble with cardiac sarcoidosis in my case is: the damage is already done.

Tonight I found myself slouched over the bonnet of my car getting paced out of a VT by my ICD.

It was quite unexpected. I guess it always is. But I have been feeling great. I have been mentally noting how good I am feeling now compared to last year, and been soooo thankful.

On Saturday I went for a 20 km cycle, and in general had a really active weekend. I have been walking more during the week too.

I had some joint stiffness this week, but I put that down to perhaps overdoing it on the cycle - my first since I had COVID three weeks ago.

Today I felt fine until about 3:30 PM when I started to feel a bit jittery and sweaty. Just like when I have low blood sugar when not eating for long stretches of time. I had a toasted cheese sandwich, and things started to feel better.

I took my son to one of his classes after work, and when walking back to my car I felt jittery and sweaty again. But it quickly got worse and I had to rest on my car bonnet.

That’s when the pacing started. My heart was beating wildly and I felt the ICD pace me. It tried three times before the VT stopped, and even then my heart felt completely out of rhythm.

I guess I will see what the technician says tomorrow. The cardiac device team should get my transmission over night, and evaluate it in the morning.

My heart feels perfectly fine again now. Of course. ❤️