Day 1185. On Saturday I felt terribly run down. At 10 AM I could hardly keep my eyes open. This lasted all day. By 6 PM I was feeling quite anxious about it. I was worried it might be linked to the VT episode from the Thursday evening. I decided to head to the hospital to have it checked out. I drove myself to the emergency department and parked the car in the paid public parking area. In hindsight, this was a mistake. Once I was admitted to ED, there was no way for me to mov

Day 1179. The trouble with cardiac sarcoidosis in my case is: the damage is already done. Tonight I found myself slouched over the bonnet of my car getting paced out of a VT by my ICD. It was quite unexpected. I guess it always is. But I have been feeling great. I have been mentally noting how good I am feeling now compared to last year, and been soooo thankful. On Saturday I went for a 20 km cycle, and in general had a really active weekend. I have been walking more during

I got my implantable cardioverter defibrillator (ICD) implanted in June 2022. That is now almost two years ago. That blows my mind a...

Day 652. I was sitting on our couch after getting home from work when it happened. Suddenly I had the feeling of a wave washing over me....

Day 641. Just when I get comfortable with my health and the rhythms of my condition, my heart decides to throw a wobbly. Yesterday...

Day 556. What a day. This morning started out with me decorating Christmas cookies, and ended with me in the emergency department....

Day 552. I have been on Amiodarone as an anti-arrhythmic medication since December 2022. It has helped keep my ventricular arrhythmias...

Days 422 to 428. I have been in South Africa for the last few weeks for my mum's funeral. To say it has been stressful is an...

Day 198. Looking back at the last few months since my diagnosis, I have had a new arrhythmia event about once a month. This has been...

Day 1. On Monday, 30 May 2022 my heart went into a Ventricular Tachycardia rhythm which ended with me getting shocked from a...