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I should be happy
Day 1135. After 3 years of treatment for cardiac sarcoidosis my most recent PET scan shows no active sarcoidosis. Organs that had shown...
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Jul 92 min read
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My doctors are not listening
Day 757. Yesterday I went to see my GP to try and take control of some of my health concerns. Last time I visited her, I went through a...
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Jun 25, 20243 min read
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Celebrating the day I nearly died
I have seen a lot of rebirthday posts in support groups on the anniversary of a person's cardiac event. Especially cardiac arrest survivors.
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May 10, 20244 min read
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Feeling reflective
Day 570. As we approach Christmas and the end of another calendar year, I have been thinking a lot about how my life has changed since my...
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Dec 23, 20232 min read
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Cancelled plans
Day 92. Dealing with cancelled plans is really tough. In general I do not like it when plans change. Cardiac sarcoidosis has tested my...
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Aug 30, 20221 min read
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My ICD implantation recovery
Days 8 to 22. Mobility One of the biggest challenges in recovering from the Implantable Cardiac Defribilator (ICD) device implantation...
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Jun 20, 20223 min read
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Buying a Fitbit Charge 5
Day 15. After being in hospital and having the luxury of a heart rate monitor to see what my heart was up to, I wanted something at home...
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Jun 15, 20222 min read
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