Day 1185. On Saturday I felt terribly run down. At 10 AM I could hardly keep my eyes open. This lasted all day. By 6 PM I was feeling quite anxious about it. I was worried it might be linked to the VT episode from the Thursday evening. I decided to head to the hospital to have it checked out. I drove myself to the emergency department and parked the car in the paid public parking area. In hindsight, this was a mistake. Once I was admitted to ED, there was no way for me to mov

Day 1179. The trouble with cardiac sarcoidosis in my case is: the damage is already done. Tonight I found myself slouched over the bonnet of my car getting paced out of a VT by my ICD. It was quite unexpected. I guess it always is. But I have been feeling great. I have been mentally noting how good I am feeling now compared to last year, and been soooo thankful. On Saturday I went for a 20 km cycle, and in general had a really active weekend. I have been walking more during

Day 1141. I had a noticeable increase in vivid dreams since I started taking Amiodarone. Last year that escalated to some pretty intense...

Day 1074. Last week was my annual cardiology appointment. This time I had a repeat echo, followed by an ECG and then a chat with the...

Day 1014. I had never had any major medical issues before this. When I used to go to a doctor and they would ask me if I had any...

Day 986. It's been a while since I have given a proper update. I have had some family and work things to deal with and also had some...

Day 599. I have never officially been diagnosed with heart failure so far. This is even though my heart's pumping ability has been very...

I had left my home monitor device for my ICD in New Zealand. From previous experience I knew that if it couldn't connect to the Internet...

Day 198. Looking back at the last few months since my diagnosis, I have had a new arrhythmia event about once a month. This has been...

Days 90 to 91. For my birthday, my heart decided to gift me the gift of a fast heart rhythm. From around 7 AM on Saturday 26 August my...

Day 53. I had my first shock from my ICD on Thursday, 21 July 2022. I don’t remember feeling any differently that morning to any of the...

Day 51. After what felt like an eternity I finally met with the cardiologist at an out-patient clinic on Tuesday, 19 July 2022. Our...

I waited very impatiently to hear back the results from the PET scan. The 3 working days came and went. The Internet research Time is a...

Days 8 to 22. Mobility One of the biggest challenges in recovering from the Implantable Cardiac Defribilator (ICD) device implantation...

Days 2 to 6. The first night in the hospital I couldn’t sleep. Too much adrenaline from the ventricular tachycardia (VT) and the ultimate...

Day 1. On Monday, 30 May 2022 my heart went into a Ventricular Tachycardia rhythm which ended with me getting shocked from a...