Day 1179. The trouble with cardiac sarcoidosis in my case is: the damage is already done. Tonight I found myself slouched over the bonnet of my car getting paced out of a VT by my ICD. It was quite unexpected. I guess it always is. But I have been feeling great. I have been mentally noting how good I am feeling now compared to last year, and been soooo thankful. On Saturday I went for a 20 km cycle, and in general had a really active weekend. I have been walking more during

Day 1155. The last few weeks I feel like my brain is made of cotton candy. The school run Monday mornings we normally plan who is picking up our son on which days. Lately I have really been struggling with keeping my schedule straight. I end up asking the husband 4 or 5 times before we leave the house: so, who is doing pickup again? He probably thinks I am losing my marbles. He is definitely noticing. Last Monday I left to go and pickup my son from school in the afternoon. As

Day 1004. Wow, it's been over a 1000 days since my life changing diagnosis of cardiac sarcoidosis. One constant has been an ongoing list...

Day 759. I have been having really vivid dreams ever since I started taking Amiodarone back in December 2022. It is so vivid that I have...

Day 726. What’s the word again? What do you call it when? What was I talking about again? What’s that person’s name again? I know brain...