top of page
Follow my journey
Search


I am stable after 3 and a half years
Day 1257. I saw my rheumatologist this week and she told me that they now consider the sarcoidosis stable and inactive. I kind of knew that already based on the PET scan, but it's nice to hear it from a medical professional. This means we will slowly start to reduce some medication and monitor things to make sure the sarcoidosis does not return. First of all, I am stopping Methotrexate and Folic Acid to give my liver a break. I can do this immediately. Hooray! Methotrex
-
Nov 72 min read


Seizure while preparing for a colonoscopy
Day 1234. Whenever I think that I don’t really have much to write about here, something health related will pop up. Fair warning: today’s post is less about hearts and more about going to the toilet. I have an upcoming colonoscopy appointment this week. Why? My bowel movements have become unusual over the last few months. Some constipation, but also some diarrhoea. There are a few days of preparation before the procedure with its own special diet and also medication to be tak
-
Oct 163 min read


Difficult to draw my blood
Day 1222. I am what you in medical terms would call “a hard stick”. I never knew this until I got sick. Every time I need to have a blood...
-
Oct 31 min read
bottom of page