Day 1141. I had a noticeable increase in vivid dreams since I started taking Amiodarone. Last year that escalated to some pretty intense...

Day 1135. After 3 years of treatment for cardiac sarcoidosis my most recent PET scan shows no active sarcoidosis. Organs that had shown...

Day 857. This week it was time for my Infliximab infusion. Sometimes that's also called a Remicade infusion. I have mine every 6 weeks,...

Day 592. I have had a few medical appointments this week. This is on top of returning to work on Wednesday and solo-parenting my son...

Day 552. I have been on Amiodarone as an anti-arrhythmic medication since December 2022. It has helped keep my ventricular arrhythmias...

Day 529. Ever since I got diagnosed with sarcoidosis and started my treatment I have been waiting for a wave of colds and flus to get me...

Day 315. My latest PET scan showed the inflammation in my heart is back. I visited my rheumatologist today and he advised that we will be...

Days 91 to 180. The last 3 months were quite the roller coaster of side effects. After upping my Prednisone in month 4 I felt rubbish,...

Days 1 to 90. In general I felt quite well in months 1 and 2 of the treatment of both my heart problems and my cardiac sarcoidosis. For...

Day 54. 22 July 2022. I met the rheumatologist for the first time the morning after my ICD shock in the hospital's cardiac ward....