Day 1257. I saw my rheumatologist this week and she told me that they now consider the sarcoidosis stable and inactive. I kind of knew that already based on the PET scan, but it's nice to hear it from a medical professional. This means we will slowly start to reduce some medication and monitor things to make sure the sarcoidosis does not return. First of all, I am stopping Methotrexate and Folic Acid to give my liver a break. I can do this immediately. Hooray! Methotrex

Day 1135. After 3 years of treatment for cardiac sarcoidosis my most recent PET scan shows no active sarcoidosis. Organs that had shown...

Day 570. As we approach Christmas and the end of another calendar year, I have been thinking a lot about how my life has changed since my...

Days 8 to 22. Mobility One of the biggest challenges in recovering from the Implantable Cardiac Defribilator (ICD) device implantation...