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I am stable after 3 and a half years
Day 1257. I saw my rheumatologist this week and she told me that they now consider the sarcoidosis stable and inactive. I kind of knew that already based on the PET scan, but it's nice to hear it from a medical professional. This means we will slowly start to reduce some medication and monitor things to make sure the sarcoidosis does not return. First of all, I am stopping Methotrexate and Folic Acid to give my liver a break. I can do this immediately. Hooray! Methotrex
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Nov 72 min read
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Cardiac sarcoidosis changed my outlook on the medical profession
Day 1014. I had never had any major medical issues before this. When I used to go to a doctor and they would ask me if I had any...
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Mar 153 min read
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It’s been a busy week
Day 592. I have had a few medical appointments this week. This is on top of returning to work on Wednesday and solo-parenting my son...
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Jan 12, 20242 min read
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Meeting the rheumatologist
Day 54. 22 July 2022. I met the rheumatologist for the first time the morning after my ICD shock in the hospital's cardiac ward....
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Jul 24, 20222 min read
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