I got my implantable cardioverter defibrillator (ICD) implanted in June 2022. That is now almost two years ago. That blows my mind a...

Day 652. I was sitting on our couch after getting home from work when it happened. Suddenly I had the feeling of a wave washing over me....

Day 641. Just when I get comfortable with my health and the rhythms of my condition, my heart decides to throw a wobbly. Yesterday...

Day 599. I have never officially been diagnosed with heart failure so far. This is even though my heart's pumping ability has been very...

Day 592. I have had a few medical appointments this week. This is on top of returning to work on Wednesday and solo-parenting my son...

I have had several ambulance trips since my cardiac sarcoidosis diagnosis. I have gone from a complete novice to a bit of a regular...

When I went to the emergency department (ED) for the first time, I had absolutely no clue what to expect. I got frustrated with certain...

Day 556. What a day. This morning started out with me decorating Christmas cookies, and ended with me in the emergency department....

Day 552. I have been on Amiodarone as an anti-arrhythmic medication since December 2022. It has helped keep my ventricular arrhythmias...

Day 529. Ever since I got diagnosed with sarcoidosis and started my treatment I have been waiting for a wave of colds and flus to get me...

I had left my home monitor device for my ICD in New Zealand. From previous experience I knew that if it couldn't connect to the Internet...

Days 422 to 428. I have been in South Africa for the last few weeks for my mum's funeral. To say it has been stressful is an...

Day 315. My latest PET scan showed the inflammation in my heart is back. I visited my rheumatologist today and he advised that we will be...

Day 198. Looking back at the last few months since my diagnosis, I have had a new arrhythmia event about once a month. This has been...

Days 91 to 180. The last 3 months were quite the roller coaster of side effects. After upping my Prednisone in month 4 I felt rubbish,...

Days 90 to 91. For my birthday, my heart decided to gift me the gift of a fast heart rhythm. From around 7 AM on Saturday 26 August my...

Days 1 to 90. In general I felt quite well in months 1 and 2 of the treatment of both my heart problems and my cardiac sarcoidosis. For...

Day 54. 22 July 2022. I met the rheumatologist for the first time the morning after my ICD shock in the hospital's cardiac ward....

Day 53. I had my first shock from my ICD on Thursday, 21 July 2022. I don’t remember feeling any differently that morning to any of the...

Day 51. After what felt like an eternity I finally met with the cardiologist at an out-patient clinic on Tuesday, 19 July 2022. Our...