Day 1185. On Saturday I felt terribly run down. At 10 AM I could hardly keep my eyes open. This lasted all day. By 6 PM I was feeling quite anxious about it. I was worried it might be linked to the VT episode from the Thursday evening. I decided to head to the hospital to have it checked out. I drove myself to the emergency department and parked the car in the paid public parking area. In hindsight, this was a mistake. Once I was admitted to ED, there was no way for me to mov

Day 1179. The trouble with cardiac sarcoidosis in my case is: the damage is already done. Tonight I found myself slouched over the bonnet of my car getting paced out of a VT by my ICD. It was quite unexpected. I guess it always is. But I have been feeling great. I have been mentally noting how good I am feeling now compared to last year, and been soooo thankful. On Saturday I went for a 20 km cycle, and in general had a really active weekend. I have been walking more during

Day 1155. The last few weeks I feel like my brain is made of cotton candy. The school run Monday mornings we normally plan who is picking up our son on which days. Lately I have really been struggling with keeping my schedule straight. I end up asking the husband 4 or 5 times before we leave the house: so, who is doing pickup again? He probably thinks I am losing my marbles. He is definitely noticing. Last Monday I left to go and pickup my son from school in the afternoon. As